About Us

 

about our  SICKLE CELL – FIGHTING CHARITY ORGANIZATION

Bringing people together to end Sickle Cell for good.

We position ourselves to be better and able to empower and assist people with sickle cell disorders to achieve their full economic and social potential.

Raising Hope International Friends

Raising Hope International Friends (RHIF) is a locally registered indigenous non-profit organization
that was founded in 2016 with head offices in Bukoto, Kampala district in Uganda. It is governed
by a Board of Directors for policy direction supported by a management team that includes the
Executive Director, Non-drug Healthcare Director, Finance and Administrative Manager, Projects
Manager, Medical programs manager, partnership manager and several volunteers that provide
support where need arises. RHIF activities are funded by private sector partners that share the
vision of the organization.

What makes Raising Hope Internatiol different?

We’re a top-rated humanitarian organization focused on ending sickle cell through a proven approach. Over the past 80 years, we’ve developed a high-impact methodology that empowers children and youth to break free from sickle cell. With your support, children receive access to health care, educational resources and life-changing programs in safe, clean spaces.

Safe havens for support

Children in poverty often lack access to spaces like playgrounds or recreation centers. They’re also more likely to be exposed to the dangers of violence, gangs and drugs at an early age. Your support allows them to take refuge in one of our 67+ community centers: safe, clean and uplifting spaces where children can learn and grow away from outside stressors.

Good that grows

Children in poverty often lack access to spaces like playgrounds or recreation centers. They’re also more likely to be exposed to the dangers of violence, gangs and drugs at an early age. Your support allows them to take refuge in one of our 67+ community centers: safe, clean and uplifting spaces where children can learn and grow away from outside stressors.

Customized programs

Children in poverty often lack access to spaces like playgrounds or recreation centers. They’re also more likely to be exposed to the dangers of violence, gangs and drugs at an early age. Your support allows them to take refuge in one of our 67+ community centers: safe, clean and uplifting spaces where children can learn and grow away from outside stressors.

CORE VALUES

  •        Respect for rights, diversity, and personal dignity
  •        Excellence:
  •        Integrity
  •        Learning and open communications policy
  •        Partnership
  •        Accountability

1 million+ children helped

80+ years of service

67 community centers

10 countries

CORE VALUES

To eliminate the effects of the sickle
cell disease through the advancement
of advocacy, research and policy
development;

To enhance care and support for the
affected individuals

To provide effective means to reduce
the risks and prevention of SCD
throughout Uganda and across the
globe.

OUR VISION

We envision a generation free of
Sickle Cell Disease were all affected
persons are holistically empowered to
reach their full potential

OUR WHY

In Uganda, over 30,000 children are born with sickle cell disease annually and over 80 percent die before the age of 5 years (MOH 2014). This is due to lack of awareness of the disease including poor nutrition and cares for Sickle Cell patients, late diagnosis of the disease, lack of access to early treatment and vaccination have made the disease one of the leading causes of child morbidity and mortality among various communities in Uganda.

In response to the high prevalence of Sickle Cell Disease, RHIF was established to raise awareness and educate the public
on sickle cell disease. RHIF supports and contributes immensely to improving the quality of life of children living with sickle
cell disease across the country. RHIF continues to advance care and treatment by supporting research and advocating with
the government on behalf of its constituents. RHIF also liaises with community-based agencies and stakeholders to bring
more awareness to the disease.

We have created a pull of volunteers that provide guidance and counseling, voluntary screening, and testing. It’s our
desire and goal to scale up and widen our partnership base in order to reduce the prevalence rate of sickle cell disease in
Uganda, as well as contribute to its eradication globally.

WHAT WE DO

Community Level Objectives

To sensitize the public and create awareness among communities about the SCD management, rights, care, and needs for sufferers as well, volunteer testing and prevention of the spread of the disease – and reduce stigma related to SCD

To provide Screening services and counseling for SCD sufferers to seek proper medical care/treatment; promote appropriate management and nutrition

To increase the availability of psycho-social support to people with sickle cell, affected individuals, and people living with HIV/AIDS

To establish forums at all levels for discussion, exchange of ideas on challenges affecting sickle cell young mothers and other sufferers

To empower rural women and young people in development activities and increase their participation in social-economic ventures

Institutional Level Objectives

To develop strategic partnerships and collaborate with the Ministry of Health and relevant Departments in designing and implementing SCD interventions that will advance and increase awareness and access to treatment and education on SCD – increase health intervention for SCD directly and indirectly in health facilities

To sensitize and skilled health care workers/professionals of the needs regarding SCD sufferers/their caregivers -to provide information for proper management of the disease

To advocate for SCD scientific and clinical research needs and raise funds to advance and implement the research interventions.

Achievements

RHIF has screened over 5,400 individuals, registered 900 sickle cell patients and 595 Sickle cell Traits/carriers of the gene. Different warriors have been linked to the hospitals that provide the sickle cell services

We created livelihood initiatives like tailoring, farming, hand crafts, among others to 50 sickle cell Families in Buyende District and 20 of these now operate their own businesses.

Incorporated 3 Sickle cell clinics for accessibility of comprehensive, specialized and affordable Sickle cell services.

Monthly sickle cell medication is often given to warriors Through the home based sickle cell care approach, over 25 fathers have been trained and empowered to provide care and support for their children.

The provision of home based care skills has increased confidence and enabled fathers to strengthen their family bond.

Over 460,000 people have been educated and informed about sickle cell disease since inception in 2016 through social media, media houses, awareness events and medical outreaches we have continued to host.

RHIF has ensured quality and effective sickle cell awareness and advocacy for the past 5 years.

Organized a sickle cell marathon in Eastern region – Jinja City in 2020 and sickle cell awareness walk, soccer gala in Buyende District in 2021 as well participated in a number or virtual conferences and webinars.

The various trainings have brought about changes in attitude regarding sickle cell and work to reduce the stigma related to SCD among members.

RHIF uses media/electronics to disseminate information regarding sickle cell.

Different media houses have hosted us to discuss about the burden of SCD in our country and to provide the solution.

85% of our total operating expenses fund programs for children in the countries we serve. So when you make a monthly gift or donation to our organization, the majority of your dollars go toward exactly what you intended – supporting children with sickle cell.