OUR PROGRAMMES

Community Engagement

Bringing together patients, families, and caregivers to build a lasting network of support and shared experiences.

Strength in Unity

Living with sickle cell disease can be isolating. Patients and families often face physical challenges, emotional strain, and social stigma. Our community engagement programme creates safe spaces where people with SCD and their loved ones can connect, share experiences, and find strength in unity.

We believe that community support is as vital as medical treatment in improving quality of life and building resilience.

Community engagement

Community Programs

Support Groups

Regular meetups organized by region where patients and families share experiences, coping strategies, and emotional support in a confidential and caring environment.

Youth Programs

Specialized activities for young people with SCD including mentorship, recreational activities, and career guidance to inspire confidence and ambition.

Caregiver Support

Dedicated support for parents and caregivers including wellness workshops, stress management, and resources to help them care for themselves while supporting their loved ones.

Peer Mentorship

Connect with trained peer mentors who understand your journey and can provide guidance, encouragement, and practical advice for managing SCD.

Our Community Impact

2,000+ Members

Active members across all regional support groups connected by shared experience and mutual support.

50+ Monthly Meetups

Regular community gatherings across Uganda providing safe spaces for connection and support.

500+ Lives Mentored

Peer mentorship pairs helping individuals navigate life with SCD with confidence and resilience.

30+ Caregivers Trained

Caregiver workshops equipping families with knowledge and self-care strategies for better outcomes.

Join Our Community

Connect with others, share your story, and find strength in a supportive community that truly understands your journey.

Get Involved