SCD News Hub

Discover a diverse range of news stories, encompassing awareness campaigns, research advancements, upcoming events, reproductive health discussions, mental health support initiatives, and so much more. We scour reputable sources worldwide, ensuring you receive the most accurate and relevant information available.
  • Nurse denied ambulance requests before migrant child died in U.S. custody, officials find

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    Anadith Tanay Reyes Alvarez, who suffered from sickle cell anemia and heart disease, died after she and her family spent over a week in Border Patrol custody.

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  • DHEC to launch voluntary sickle cell disease registry

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    Sickle cell disease is the most common inherited blood disorder in the U.S., but what we know about its impact on South Carolinians is limited.

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  • This Humble Virus Could Revolutionize How We Treat Genetic Diseases

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    A new type of gene therapy could be cheaper, safer, and more efficient at treating diseases like muscular dystrophy and sickle cell disease.

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  • and causes strokes and organ failure if untreated

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    Sickle Cell Disease is the country's fastest growing genetic blood disorder and can be fatal - but there is hope

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  • Targeting the hemoglobin problem in sickle cell disease using a new drug

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    A class of drugs used for their ability to stop tumor cells from dividing is now under study for their potential to reduce the pain and damage caused by sickle cell disease, investigators report.

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  • Precise genome editing approach can correct mutation that causes sickle cell disease

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    Scientists at St. Jude Children’s Research Hospital and the Broad Institute of MIT and Harvard showed how prime editing can correct the mutation that causes sickle cell disease in a potentially curative approach.

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  • Sickle cell patients undergoing total knee replacement face higher risk for complications

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    Patients with sickle cell disease (SCD) who undergo total knee replacement are at higher risk for complications than non-SCD patients, according to a large-scale, retrospective study by researchers from UT Southwestern Medical Center and the University of Calgary.

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  • ICER suggests $1.9M price tag for pending sick cell disease drugs

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    Institute for Clinical and Economic Review ((ICER)) says that sickle cell disease therapies, exa-cel, and lovo-cel, should be priced at up to $1.9M. Read more here.

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  • Siblings with sickle cell disease searching for a donor match

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    The parent of two children who are receiving care at MUSC in Charleston is spreading awareness about an inherited disorder that affects millions of people around the world.

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  • Siblings with sickle cell disease searching for a donor match

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    The parent of two children who are receiving care at MUSC in Charleston is spreading awareness about an inherited disorder that affects millions of people around the world.

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