SCD News Hub

Discover a diverse range of news stories, encompassing awareness campaigns, research advancements, upcoming events, reproductive health discussions, mental health support initiatives, and so much more. We scour reputable sources worldwide, ensuring you receive the most accurate and relevant information available.
  • SC Sickle Cell Disease Registry now live online through DHEC

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    The voluntary registry will connect South Carolina sickle cell disease patients, caregivers, doctors and providers in a database to coordinate care and information.

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  • Buy bluebird bio's Lovo-Cel As It Transforms Sickle Cell Disease Treatment

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    bluebird bio specializes in gene therapies for severe genetic diseases and has 2 FDA-approved products. EV/Sales multiple appears cheap. Find out why BLUE stock is a Buy.

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  • 'Made in India' Drugs For 4 Rare Diseases Reduce Treatment Cost By Nearly 100 Folds

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    Now, drugs for four of these diseases -Tyrosinemia Type 1, Gaucher's Disease, Wilson's Disease and Dravet-Lennox Gastaut Syndrome – along with sickle cell Anemia have been approved and are being manufactured indigenously

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  • Major drop in cost of drugs for 4 rare diseases after Indian companies begin production

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    In addition to rare diseases, the government has also urged the industry to produce an oral solution for hydroxyurea needed for the treatment of children up to the age of 5 years suffering from sickle cell disease.

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  • Sickle Cell Disease patients and the use of disease-modifying treatments

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    New disease-modifying treatments (DMTs), namely, crizanlizumab, L-glutamine, and voxelotor, have recently been approved.

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  • UK Gives Historic Nod to Gene Editing Tool for Blood Disorders, High Costs & Long Wait May Limit Indians' Access

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    Data suggests that India has over two crore or 20 million patients with Sickle Cell Disease and the largest number of children with Thalassemia major in the world --- about 1.5 lakh with more than four crore or 40 million carriers of beta thalassemia trait

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  • UK first to approve Casgevy gene therapy for blood disorders

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    Casgevy is a gene-editing tool devised using CRISPR-Cas9 to treat two severe blood conditions – sickle-cell disease and β-thalassaemia.

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  • Britain approves world's first gene therapy Casgevy for sickle cell disease and thalassemia

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    The UK drug regulator says it approved Casgevy for patients with sickle cell disease and thalassemia who are 12 years old and over

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  • World’s first gene-editing therapy for humans approved in UK

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    Treatment offers relief and possibly a cure for patients with sickle cell disease and one other blood ailment

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  • "World First As UK Greenlights Landmark CRISPR Gene Editing Treatment"

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    The therapy will target the blood conditions sickle-cell disease and beta-thalassemia.

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