SCD News Hub

Discover a diverse range of news stories, encompassing awareness campaigns, research advancements, upcoming events, reproductive health discussions, mental health support initiatives, and so much more. We scour reputable sources worldwide, ensuring you receive the most accurate and relevant information available.
  • Zydus gets orphan drug status for Sickle Cell Disease medication

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    Zydus Lifesciences receives Orphan Drug Designation for Desidustat, a new treatment for Sickle Cell Disease.

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  • Zydus’ Desidustat gets Orphan Drug Designation from U.S. FDA for Sickle Cell disease

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    Zydus on Friday said U.S. Food and Drug Administration has granted Orphan Drug Designation (ODD) to Desidustat for the treatment of Sickle Cell Disease (SCD).

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  • Marquette players have a 10-year-old teammate. It's a sweet story.

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    B.J. Mathews loves basketball and is dealing with sickle cell disease. That brought him into the orbit of the Golden Eagles.

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  • Zydus’ Desidustat gets USFDA orphan drug status for sickle cell disease

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    Zydus Lifesciences announced a significant development today. The US Food and Drugs Administration has granted Orphan Drug Designation to Desidustat. This novel oral medication is intended for the treatment of Sickle Cell Disease. This designation supports the development of therapies for rare diseases. Zydus believes Desidustat can address an urgent medical need for patients.

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  • Zydus Life bags USFDA orphan drug tag for Desidustat indicated for sickle cell disease treatment

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    The company noted that current treatment options for SCD are limited, while hydroxyurea can reduce the frequency of painful crises.

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  • Zydus gets orphan drug status for Sickle Cell Disease medication

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    Zydus gets orphan drug status for Sickle Cell Disease medication

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  • Zydus Lifesciences Receives USFDA Orphan Drug Designation for Sickle Cell Disease Treatment

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    Zydus Lifesciences has received USFDA orphan drug designation for Desidustat in treating sickle cell disease, marking a significant regulatory milestone. This status could grant the company seven-year exclusive marketing rights upon approval, providing substantial commercial advantages. The designation validates Desidustat's potential in addressing sickle cell disease and positions Zydus strategically in the rare disease therapeutic market.

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  • Young adults with complex childhood conditions experience longer hospital stays, higher readmissions

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    Young adults with complex chronic childhood-onset conditions such as sickle cell disease and cystic fibrosis experience longer hospital stays, higher readmission rates and greater use of resources in adult hospitals, according to a new study in JAMA Network Open.

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  • Study finds longer hospital stays and higher readmissions for young adults with complex childhood conditions

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    More children with medically complex conditions are surviving into adulthood, but researchers have had limited visibility into how these conditions influence adult hospital care. Young adults with complex chronic childhood-onset conditions such as sickle cell disease and cystic fibrosis experience longer hospital stays, higher readmission rates, and greater use of resources in adult hospitals, according to a new study.

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  • Fury as NHS trust closes 'vital' London emergency unit for those with deadly disorder

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    Sickle Cell Disease is the fastest-growing blood disorder

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