SCD News Hub
'Will it really work?': Young sickle cell patient among the first to start new gene therapy
Since two gene therapies were approved for sickle cell disease in late 2023, only a handful of patients have started the expensive treatments.
Read moreOver 700 experts to join MUHS’s first tribal health symposium
The project addressed seven major health concerns: breast cancer, liver disease, osteoporosis, sickle cell disease, sexually transmitted diseases, oral cancer, and malnutrition.
Read moreNew insights into accelerated aging in young sickle cell patients
A new research paper was published in Aging (listed by MEDLINE/PubMed as "Aging (Albany NY)" and "Aging-US" by Web of Science) Volume 16, Issue 21 on November 14, 2024, entitled, "Adolescents and young adults with sickle cell disease exhibit accelerated aging with elevated T-cell p16INK4a expression."
Read moreVertex Pharmaceuticals presents long-term data on CASGEVY at ASH
Vertex Pharmaceuticals (VRTX) announced longer-term data for CASGEVY from global clinical trials in people with severe sickle cell disease or tr...
Read moreCustodial death: Bengaluru court says victim died of torture, not sickle cell disease
The case dates back to March 2016, when 42-year-old Mahendra Singh Rathod died after being subjected to custodial torture at the Jeevan Bima Nagar police station.
Read moreFirst U.S. trial uses non-viral CRISPR to correct sickle cell mutation
UCSF Benioff Children's Hospital Oakland is enrolling patients in an innovative clinical trial that seeks to cure sickle cell disease.
Read moreSCD health disparities tied to community factors
A new study finds that preschool-aged children with sickle cell disease (SCD) who live in food deserts and have limited access to transportation are at greater risk for acute complications and hospitalizations, despite receiving free evidence-based therapy and social support, according to results published today in Blood Advances.
Read moreHealth News Highlights: Emergencies, Therapies, and Approvals
Current health news includes the declaration of a public health emergency in Georgia due to Hurricane Helene, the slow uptake of gene therapy for sickle cell disease, Missouri health workers showing symptoms after contact with a bird flu patient, FDA approval of a diagnostic drug for heart disease, and Marburg virus deaths in Rwanda.
Read moreBreaking Health News: FDA Approvals, Emergency Declarations, and More
This summary of current health news includes FDA approvals for new drugs by Bristol Myers and GE HealthCare, public health emergencies, the impact of sleep shortages during pregnancy, and issues surrounding gene therapy for sickle cell disease. Additionally, it covers Medicare premiums, pressure for avian flu vaccines, and recent healthcare worker developments.
Read moreStroke risk rises in patients with sickle cell disease despite established guidelines
The incidence of stroke continues to increase for adults and children living with sickle cell disease (SCD) despite the Stroke Prevention Trial in Sickle Cell Anemia (STOP) establishing standards of care like transfusions and tests to measure blood flow in the brain for those deemed high-risk, according to a study published today in Blood.
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