About Sickle Cell Disease
Understanding Sickle Cell Disease is the first step toward better care and support for affected individuals and families.
What is SCD?
Sickle Cell Disease is a group of inherited red blood cell disorders that affect hemoglobin, the protein that carries oxygen through the body.
Inheritance
SCD is inherited from both parents. If both parents carry the sickle cell trait, there's a 25% chance their child will have SCD.
Impact in Uganda
Uganda has one of the highest SCD burdens globally, with over 20,000 babies born with SCD each year.
Common Symptoms
Pain Crises
Episodes of severe pain due to blocked blood flow, often affecting bones, chest, and abdomen.
Anemia & Fatigue
Shortage of red blood cells causing weakness, pale skin, and extreme tiredness.
Swelling
Painful swelling of hands and feet, often the first sign in infants.
Frequent Infections
Increased risk of infections due to damaged spleen function.
Delayed Growth
Slower growth and puberty in children due to nutrient deficiencies.
Treatment & Management
Pain Management
Medications and hydration to manage pain crises effectively.
Blood Transfusions
Regular transfusions to increase normal hemoglobin and reduce complications.
Hydroxyurea
Medication that increases fetal hemoglobin and reduces pain crises.
Preventive Care
Vaccinations, antibiotics, and regular health check-ups to prevent complications.
Bone Marrow Transplant
Curative treatment option for eligible patients with matched donors.
Living with SCD
With proper care and management, people with SCD can live full, productive lives. Key aspects include:
Get Tested Today
Early diagnosis through newborn screening and genetic testing can save lives and improve outcomes.
Contact Us for Screening Information